Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, April 23, 2013

Tick-tock

The days tick down like water slowly dipping from a faucet--maddening, predictable, yet with a tight intensity lurking beneath the surface; it's as if each drip is tightening a screw, or pushing a boundary, and the danger is a sudden rupture or failure.  I don't just mean within Mark, I mean as a metaphor for the situation itself.  It is quietly tense, the waiting is just as suspenseful as waiting on a verdict, and then, yesterday, it came.

Pancreatic.

I was out on the canals, taking a long walk to clear my angry head.  I woke up in a foul mood, one of those days where you just wake up on the wrong side of the bed.  I was angry over the whole situation.  I had nightmares that night, and woke up and cried, and then just lay in my bed feeling waves of anger and sorrow washing over me, as strong as any physical tide.  So, I decided the best plan of action was not to just remain in bed stewing (which I had considered), but to get up and out, and let the wind and the sun clear away the damage.

As soon as I started down the path, earbuds in, Joyce Meyer going, my phone started blowing up.  That irritated me even further initially, until I saw it was Dr. H.  My breath caught, and for a second, I contemplated letting it go to voice mail.  I wasn't sure I could handle the call alone, but that instant of cowardice immediately passed, and I picked up the call.  Dr. H. was as jovial and to the point as usual, "Pancreatic, I'm afraid, as we had suspected, but hoped against.  But, don't lose hope, his case is extremely unusual, so perhaps he has a fighting chance!"  Then, he began to list all of the week's goings ons, including port surgery, chemo consultations, and chemo itself.  I just slowed my pace down until I came to a bench, and after we hung up, sat there staring at the ducks in the canal.

After a while of just feeling the wind and the sun, I roused myself, and called Mark.  From the conversation, I could tell the doctor had not called him.  He had left me to the task.  I decided not to tell him that news over the phone, it was not a kind or caring way to do that.  When Mark asked if I had heard news from the doctor, I said he had just given me some information about changing the appointments around, but hopefully we would hear something by the end of the day.  I know it was a white lie, but it could not be helped.

I pulled myself slowly together, went home and washed up, left a steak for Anthony, and headed out to meet him.  I told him the diagnosis at the end of his work day, when we were alone, and he was finished and closing up his office.  He took it stoically and resignedly.  We both knew this was a possibility, we had just prayed it wasn't, but we knew it could be, so it wasn't a complete shock.  We hugged, left quietly, and went back to his mother's farmhouse where he could rest and I could make him a light supper.

We talked about his wishes, final arrangements, and other things that made me so sad and queasy inside, but he initiated it, and I had to respect him, and give him a measure of control over the possibilities, so he can feel at peace with everything that is going on.  He told me all he wanted done should he lose his battle, and I promised him it would be so.  He said wanted his post-funeral luncheon at the restaurant we had our wedding reception in, so he could feel as if he is there with us.  I cried about that all night, the thought of it, the bittersweet mix of grief and memories of past happiness that would be there, even if he wasn't.

But, I resolved myself to help him battle this out to the end.  Cancer is not going to claim another person in my life without getting a good ass-whooping itself.  It's a dark, vampire entity, and we are busting out the garlic (literally!) and every weapon in the arsenal.  Cancer, watch out.

Friday, December 31, 2010

New Year, new year...

Nicole Cummings England, September 24th, 1973---December 24, 2010


Yesterday was Nicole's viewing, and what a hard day that was.  We started off with all of the kids crammed into the car (like the good old days!), and we set off to New York.  We had to make a "pit stop" in Manhattan to drop off some of my work for an upcoming show, and we did not anticipate that we would be sitting for *two hours* in the helix by the Lincoln Tunnel.  So, imagine a carload of teenagers whining about their asses being sore, having to use the bathroom, and being hungry, and being bored.  I was ready to RUN through the tunnel on foot by the time we actually got near to it!

The City was still poorly cleared and cleaned after the blizzard, so it made for monstrous traffic and parking became like the legendary unicorn...we did manage to find some illegal parking, and Mark stayed with the car as I used the young muscles to carry my work to the gallery.  After a much needed bathroom and food break, including a dirtywater dog for Mark for his post as parking spot "watchman,"  we started out on our journey again over the Brooklyn Bridge.  With traffic moving steadily at a crawl all the way through to Staten Island, we arrived nearly seven hours after we started our trip, and we were frazzled and just grateful to be out of the car by that point. 

We stopped to gather with the family before the second viewing of the day, and enjoy some light dinner together.  Her parents were holding up as best as can be expected when enduring a tragedy of this magnitude.  Her mother is an elegant, and beautiful woman, and Nicole and she were so similar, it is amazing to behold.

We arrived at the funeral parlor, and Mark went out to find some parking, as the number of mourners and friends, even at this final viewing, was overwhelming to the point of having to open up the adjoining rooms to accommodate everyone.  Luckily, Nicole's was the only wake for that time in that funeral home, so that all of her well-wishers packed every last seat, spot and crevice of the place.  There had to be at least a hundred people at this particular viewing, and several hundred during the course of the day.

The flowers were so amazing, literally a hundred different beautiful arrangements, some monstrous in size, down to a few, small delicate orchids with a dainty vase and beautiful sentiment, and they filled every last spot along all of the walls, fanning out from her coffin.  The scent of the flowers was overwhelming at first, and made me cringe...that sickening smell of sweetness, in association with funerals, always repulsed me until I can get over my aversion and adjust to it.

Nicole lay in a beautiful, pink lined coffin that was pearlescent gray, with rosebud handles, looking like Sleeping Beauty.  She was so beautiful still, even in death, with long blonde hair spread out, and a look of deep peace and serenity on her lovely porcelain skin, a hint of shimmering pink on her lips.  My emotion overwhelmed me at the sight of her, a mixture of disbelief, pain and sadness...how this can't possibly be true, it can't possibly be the end...and it's not.  The look of glowing acceptance on her cool cheek bolstered my knowledge of her residence in Heaven...she was with God, and she was released from this mortal world.  No more pain, no more suffering, and she will always be young, always be sweet and beautiful...

My sister had pinned a delicate, pink antique crystal brooch to Nicole's pretty white sweater, and the beauty of it made me smile.  Nicole was always such a stylish woman, she would be pleased.  I touched her smooth, relaxed hand as it clutched her crystal rosary, and whispered my final good-bye to her...

I hugged my brother and the boys.  They were holding up, and were grateful for the large outpouring of love and support.  My brother seemed dazed by the whole event, but put his best face forward, and greeted everyone with dignity and gratitude.

Today was her burial, early this morning, but we were unable to make it back.  Her parents understood, hugged us "goodbye," hoping that will keep in touch even though Nicole is gone now.  I promised her Mom that we would, and she looked deep into my eyes, with her beautiful blue eyes filled with tears, and for that moment I looked into her soul, and felt the depth of her pain, and all I could do is hug her and weep...

And so, we said good-bye to our beloved Sister. 

It's New Year's Eve, and I am very subdued, and yet, hopeful for the happiness that 2011 will bring.  Life is a mixed bag, and for the huge, sad events that happen to us, there are many, many good ones too.  We shoulder on, we remember our dear ones who left us, and we go forward and build happy bridges to the new people that enter our lives...our sister Nicole left us this year, but my sister Dale gave birth to a new baby girl, named Nicole, for our dearly departed, and we now get the privilege of moving through the new circle of life, and the pleasure of watching these new people grow into our lives...in the end, life is Good, life is a Gift, life is a Blessing.

And, with that thought, I look forward to 2011.

God bless you all, and have a wonderful, happy, healthy, prosperous 2011.

Saturday, May 23, 2009

Beyond Hope

Can I be hoped? helped? In that order...I'm alone, 3 am, I entertained and loved, ready to rip off my own skin...

I don't say I hated entertaining, or the people I did...I hated not being good enough...I hated the fact that I'm fucked up...I looked into their eyes, knowing I was lost--because I am...in this world. They were better than me, and I struggled to stay alive...my work, my paintings...that makes me "whatever." Shit. Puke. Everything awful and dead.

My paintings...most of the time, I look at them and want to kick them in, burn them, trounce them...same as that goes on in my mind. They are trash in my mind--no one that amounts to anything thinks about them. Especially family.

Oh, by the way...to show I'm completely worthless...Nicole got a clean MRI today...her brain cancer is in remission. I'm happy and numb... numb because I'm still to blame over not "reacting" the right way. I'm a freak...I love her, but I'm just sick. I've never ever done the right thing, and now, they have the excuses to fly against me as to why I'm this way.  It's what it is...blown up...destroyed...sunken like a destroyer.

I realize NO ONE has loved me...they may have reached out a hand it transition, but looking at my group of FB friends, I realize I wasn't loved. Not important. Not in the right way. I was hot and distant. I hated myself, and apparently, they all hated me to. What a fucking horrible realization, a slap.

You never knew a piss-0ff like what i feel...fuck it. I know who's worth their fucking metro card.

Thursday, April 30, 2009

Addendum

I found out what my vague queasiness has been for these last few days...and it had nothing to do with nostalgia, anniversaries or lost opportunities--it was my Dad. His cancer has returned.

I knew something was wrong, and I couldn't pinpoint it. I have a sixth sense when evil is on the wind, I always seem to know...it's not a clear premonition, just a grieved spirit of sorts comes over me. It's happens literally in front of every bad event/storm in my life--and I mean life changing events, like deaths, serious illnesses, accidents.

He's gone back to the hospital today, for further testing, and a game plan on how to handle this. First, the infection in his body needs to be brought under control, so they can figure out his chemo courses...I'm waiting to hear from him and my Mother later today.

In an effort to distract myself and expend some excess nervous energy, I was outside planting my pathetic, brink of death sapling plants, and I ripped my thumbnail almost off at the base, so I'm in alot of damn pain (right hand to boot) and I can't concentrate or attempt to paint tonight until this heals up a little bit (tomorrow hopefully). I'm so blindsided by all of this, and the waiting, it's like I'm underwater looking at the surface.

So, there it is. Now it's time to don the armor and begin battling again.

The Comfort of Gloom

To me, there is something so comforting about a gloomy day...the peaceful grayness of it, the melancholy quiet, the soft, misty, ethereal air...it just makes me feel as if I'm being wrapped in a coccoon of quiet and calm...like a giant pair of unearthly, angelic arms are holding me.

That's what it's like outside today, and it makes me very content. I have things to do, and I don't feel bad not doing them, because these days aren't so often...to have the perfect, gloomy day outside!

My Dad's been feeling poorly...we're hoping it's not pneumonia. His Onc put him on some heavy duty antibiotics for his upper respiratory infection, and it's knocked him down pretty well. I had a terrible dream about him last night...I dreamt I went to visit him. I walked into a bright and foreign kitchen, and he was unrecognizable. The drugs had swollen his face up to the point of disfigurement; even his eyes were changed and so sad. Strangely, his body was that of a very young, healthy man, muscular and vibrant. I was horrified and I said to him, "Dad, you have to see your Doctor immediately!" He refused (as always) and said, "Let me just give it another day, the medicine is working!" I was insistent that he see his Doctor, and he refused, and I left him, with a feeling of dread, that he might not make the night. Then I woke up.

I guess it was even worse then the dream I had the night before, that when I blew my nose, copious amounts of red insect pieces (looked like maggots or something) kept coming out...

I don't know...I only know that I feel ok today, must be all the St. John's Wort I've been taking for the last few weeks...

Crow in the Mist New oil painting

“Crow in the mist” by Hilary J. England, 12” x 16” oil on canvas  I was out walking along in the cold damp fog the day before the big snow, ...